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Because we know that many of you love John Moore and that you are concerned about his progress, we (his family) have created this site to provide updates about the health journey of our husband and father. Whether you know him personally as a relative, friend, “almost family,” fellow church member, a member of the robotics community, or tangentially through his family, we appreciate you as part of the caring community he has nurtured over his lifetime. Thank you for the calls and texts, as it reminds us of the immense care each of you have for John and his family. However, frequently repeating distressing information about John’s health status is emotionally taxing during this difficult time. Therefore, we hope that this site will provide a space where we can share timely updates about John and his health with his extended community so that the calls and texts can continue to focus on the love we all share for John.
~ The Moore Family: Jackie, Danielle, Monica, Shai, & JT
Click the 'How can I help?' button anywhere on our site to view the Meal Train page set up by Leslie Bailey.
Monday, February 6, 2023
God has spoken. John Thomas Moore Sr made his transition early this morning. Amen.
Saturday, February 4, 2023
What a week! Wednesday we had church right at his bedside including a full devotion and sermon. Yesterday our pastor came by for final communion and benediction. Music has filled this house as we prepare ourselves for the storm. Tonight is a very cold night. We all piled on extra blankets as we watched Kevin perform an opera scene he described the last time he was in town.
With JT and my mom away at a robotics event, we received a call that a water pipe had burst in our rental property. Not only that, our robotics space was in desperate need of being packed. We were in a storm heavier than we could anticipate. In times of struggle, we know that we can always lean on to God's unchanging hand. Lord, we trust You! ~SM
Wednesday, February 1, 2023
We've had a few excellent days from the grands! Following his graduation from undergrad in December, Kobe received an unexpected offer to start grad school a semester early. The only caveat being he needed to submit a completed application on the same day. In typical Moore-family fashion, we jumped to work on collecting letters of recommendation, transcripts, and writing a personal statement. Yesterday Kobe started his graduate school journey and got a chance to video call his Papa to tell him the good news. My dad is sleeping more and talking less so he expresses himself in different ways. Daddy opened his eyes and smiled when he heard Kobe's voice. Papa is so proud of you, Kobe!
Today is the first day of Black History Month! That means The Black Panther: Wakanda Forever has made it to Disney+. During its original release in theaters, my dad's health prevented us from watching it together so we sat down for an in-house movie night. Our favorite part (by far) was listening out for Kevin who sang as a member of Vocality Singers with Encompass Music Partners. As we shouted, "Do you hear that? That's Kevin!" he once again opened his eyes and watched carefully. Papa is so proud of you, Kevin!
As his condition continues to decline in heart-shattering ways it does me so much good to think of ways he's still our Papa, our Daddy, our husband, and our John. ~SM
Friday, January 27, 2023
My dad was diagnosed with cancer for the first time 20 years ago. I was 12 when I learned about white blood cell counts, bone marrow transfers, radiation, chemotherapy, and the toll cancer treatment can take on the human body. I was 18 when I learned that my dad was preparing for surgery to remove his prostate cancer while I was 600 miles away adjusting to my freshman year of undergrad. At 29, while I prepared for the first year of my PhD program during the height of a global pandemic, I found out that my dad's prostate cancer had returned.
No matter how often our family went through this cycle of worry and hope, it never gets easier. However, educational and counseling resources have offered me invaluable tools to help me understand what was happening to my dad and how to cope with the anxiety, worry, and fear.
I would like to share with you some of these resources that have helped me. Perhaps they will help you or someone you care about as well. || MJM
Friday, January 27, 2023
John has been home two full days now and is starting to receive daily visits from the hospice nurse. I have made most of the difficult notifications of his change of status and the kids and I are trying to develop new routines. We have more equipment to make him physically more comfortable and yesterday he was able to enjoy a bit of watermelon (one of his favorite snacks!). He even tasted the hand made Chinese dumplings that Christina provided. There is no ‘good’ time to call or visit as each day is different. Reach out whenever the spirit moves you. Because mornings are usually occupied by medical staff, visitors are most welcome after 12:30. Feel free to call anytime; just leave a message if he is not able to take your call. We regularly play all messages left for him. {JDM}
Wednesday, January 25, 2023
Thirty years ago, John and I faced a medical crisis concerning the potential of our child being born severely handicapped (possibly not even viable). As we faced the prospect of raising a child that might not see adulthood, John’s response was simple and direct. “If God gives us a special needs child, then He must think we are special parents. The same God that was with me and took care of me back in Mississippi, is the same God who is with us now. We will be alright.” John was admitted to inpatient hospice care this past Saturday and Tuesday night was discharged to home-based hospice care so we can provide as much love and comfort as possible. To comfort myself, I remember his words: “the same God that was with us then, is with us now.” We will be alright. {JDM}
Sunday, January 22, 2023
In their hearts humans plan their course, but the Lord establishes their steps.
Proverbs 16:9 NIV
It is now three weeks after John's discharge and I had planned to make a surprise visit to church today. But the same day I started to make those arrangements, John became increasingly more uncomfortable due to extreme nausea and labored breathing. We were no longer able to manage his symptoms appropriately. At yesterday's pre-scheduled hospice consultation and assessment, the hospice nurse confirmed the need for a procedure that was best done in the hospital. John was admitted as a hospice patient and last night the procedure was done. He is now breathing better, finally resting more peacefully, and I hope to have him home again no later than tomorrow. I am in his hospital room as I write this, keenly aware that I can make all the plans I want, but the Lord has the final say. I also trust that He knows best. {JDM}
Thursday, January 19, 2023
When my dad was hospitalized back in October, he asked that I bring him a watermelon. I'd never picked out a watermelon before so I googled my best googling. The one I picked out was flavorless and too far out of season. I felt so bad about not being able to give him what he asked. This morning Daddy requested watermelon so I set off in search of something suitable. I had trouble holding back tears when he sighed and said "that's a good watermelon." ~SM
Friday, January 13, 2023
It's hard to believe that John came home from the hospital two weeks ago today. The first few days were stressful as we worried if we could provide the same level of care at home that he received from a team of caregivers at the hospital. Since I stayed with him at the hospital the month he was there, I learned a few best practices. My children brought with them their own specialized knowledge and coupled with advice from my favorite RN sister, we have exceeded the previous quality of care in the loving ways that matter the most to quality of life.
John has been able to visit with his younger grandchildren who weren't allowed in the hospital and to spend time with Monica's fur baby. While we still mask up, visits are a bit more relaxed and when not visiting, he can watch his favorite western TV shows. Another benefit of him being home is that with all our children being adults, we have had many more days when we are all in the same place for an extended time.
Given that John's health is still declining, we are grateful for this extra time together. And we appreciate you for making this less stressful. {JDM}
Thursday, January 12, 2023
Yesterday was a tough day all around. John developed a new pain in his side that we couldn’t control with existing medication. We also received bad news about his blood test results. It appears that his kidneys are not working well enough and that has put a strain on his heart (which is already compromised). Last night was a bit challenging, but we got through it. Today, John is resting better but is clearly weaker. If you are looking for what to pray for, please join us in praying for guidance. {JDM}
Monday, January 9, 2023
After a week at home, we've established a good rhythm and are humbled to share that a Meal Train page has been set up by a dear friend, Leslie Bailey. John's pain is mostly managed by frequent adjustments, prescribed medication, and loving conversations. He sleeps more often than he is awake but he is very much on top of it! We have felt so encouraged by the calls, visits, prayers, and positive energy sent our way! ~SM
Tuesday, January 3, 2023
Whew! The past few days have been stressfully rewarding. The stress came from the impact of being discharged on a 3 day holiday weekend. Time sensitive prescriptions for pain relief were stalled, medical professionals who could answer questions and/or push things through were unavailable, and most businesses were closed. It was as if the medical industry wanted to punish us for not accepting hospice care while in the hospital. But God…Against all odds and obstacles, He showed us the path forward. Shai traveled to six pharmacies and a medical supply house to source what we needed for his care. When businesses reopened, we spent hours on the phone with the pharmacy, hospital, and doctor's offices to get the prescription actually released for use. The medication was administered 3 hours late, but John did receive relief. I also received a reminder that people are used by God to offer care, but that it is ultimately God who takes care of us. Thank you God for putting the right people in our path and for the wisdom to know who they are.. {JDM}
December 31, 2022
Welcome home! Yesterday John was discharged from Northwestern Palos Hospital to his home under the care of his wife and children. We will be taking some time to get a rhythm and routine together. ~SM